Blog For Free!
Archives
Home
2008 June
2008 May
2008 April
2008 March
tBlog
My Profile
Send tMail
My tFriends
My Images
Sponsored
Blog
|
| where dO we gO frOm here? |
| 03.31.08 (11:13 am) [edit] |
|
I spent most of the weekend with my oldest daughter in the e.r. Ellis said "she has pleurisy" what? Is that why she has chest pain, or is it medication related like her ped. cardiologist first thought? Saturday I so wanted the kids and I to sleep in. By the time I picked up my youngest 2 from my parents and tried to brave the ice (no salters or sanders were out) we got home at 3:00 a.m, I was going to let them stay at my parents but my dads' health is not good.
Saturday Kayla woke up early and said "mom my chest still hurts" and my first thought was OMG I can't take this anymore! Life for Kayla sucks! She is 16 and has spent most of her life in and out of hospitals. For the first 6 years of her life it was all medical stuff kidney surgery, seizures to to her high fevers 105 was a temp. that always got Kay back into the hospital. From the age of 7 right up until now she's been depressed, hearing voices/visual hallucinations. She's a cutter too and that in itself is so hard to deal with. I'm an adult and don't really understand it, my son and even now my 6 year old are asking questions all the time.
I know the kids and I will be in therapy for life and that's okay as long as it helps. It really has hit me in the last few months that maybe Kayla will not be able to live with us and will have to go to an R.S.S. placement downstate in Dutchess County - which is about an 1 1/2 hr. drive one way. This program is only for a year but it only takes in 6 girls to 12 staff. These girls suffer from serious mental health illnesses like Kayla schizophrenia, schizoaffective disorder, conduct disorder etc. They live in this old Victorian mansion and go to school right in that district, have regular therapists outside of the "house" as well as in home, a doctor the whole works. Anyway I filled out the paperwork last week with Kayla's social worker and have cried pretty much everyday since.
My husband though I love him and we've been married 19 years does not agree that Kayla needs this intense therapy program for Kayla. It is a long time one year but they do teach her how to deal with her illness and how to cope with it as it's life long. I hate to say it but right now she needs more than her dad and I can give her. Her brother has his own mental health issues (that's for another post)and he's been going through hell and talking all suicidal. What is this doing to my little 6 year old? She never wants to go to school anymore she just wants to stay home and play with me.
I'm praying too but I have to say I am beginning to question everything I believe in and have been taught.
|
|
|
| |
| scary but true! |
| 03.29.08 (9:25 am) [edit] |
|
My 16 yr. old was having chest pain last night, so we called the paramedics they said "she does not look like she's in cardiac distress" really? Well than she must be okay right? I said are you going to take her blood pressure or something she has a history of elevated QT score. Then they started jumping!
Long story short they took her in the ambulance, I followed we were there from 9:30 p.m. until 2:45 a.m.! They hooked her up to the heart monitor, did blood work, urnine test and hours later the doctor came in said he'd order a chest x-ray and I said what about her QT score? he said he did not have a EKG to look at? well hey man order one she's got insurance! He never did, she had the chest x-ray and the nurse came in about 30 minutes later with discharge papers.
They said she has acute pleurisy, okay what the hell is that? The nurse said oh it's nothing just some flued on her lungs. Well I say what do you do to treat this? Nothing she said take her home and get some Motrin into her and she will feel much better! OMG what is happening with our healthcare system? We did not see another doctor and this nurse really lacked people skills.
When I get the survey form about how the treatment was at Ellis Hospital I will fill it out and list every complaint I had. The lady in the next bed from my daughter was in an accident (very icy roads here last night) she was laying flat - strapped down to her back board, he legs, belly, chest and feet all strapped down with a neck brace. She was getting stiff because from 11:30 when she arrived until we were leaving at 2:45 a.m. she had not been x-rayed and the doctor was just going in to see her. What another eye opener.
This city had 2 hospitals for the population and they were taxed now they are closing down the smaller one and Ellis is a trauma center and will never be able to handle all the smaller emergencies, people should be very scared and write to someone maybe a Senator or our Congress reps., who knows but it may help.
|
|
|
| |
| mOre madness! |
| 03.28.08 (2:30 pm) [edit] |
|
You know how the expression goes "when life hands you lemons make lemonade?" I'm am knee deep in the stuff! lol
My daughter Kayla is just out of the hospital after a 30 day due to her depression. Things are just the same now as when she went in to the hospital. They did take her off 2 meds. though which were causing her heart rate to increase!
If she does not take her meds., she hears voices and is suicidal, if she takes her meds, she is still depressed and hears voices/has visual hallucinations too and is still suicidal. I am beginning to think no more meds.! We have tried that in the past and unfortunately that did not work.
Derrick my 13 yr. old was asked to fill out a Natl. Junior Honor Society packet and hand it in today. Did he fill it out, yes but he did not get his advisors signatures or even bring it in to school today! My first instinct was to run it over to the school so he'd have it for the meeting today. Did I? NO and I've been feeling guilty and sad really because Derrick has so much potential and he's going down the wrong road. When does this madness end?
|
|
|
| |
| my first pOst here! |
| 03.26.08 (5:06 pm) [edit] |
|
This is my first post on my new blog here at tblog. I'm excited. Blogging was like a hobby for me. I could not seem to get enough of blogging and I made alot of friends that way. Unfortunately all my blog friends seemed to have given up their posts. I wanted a change and that's why I'm here at tblog.com
I'm a married SAHM with 3 children. My oldest daughter is 16 and diagnosed schizoaffective disorder/bi-polar type. She just came home for another lenghty hospital stay to help with her depression, and she seems to be stable for now.
My middle child is 13 and giving me hell! He thinks he's 21 and can do what he wants because 1.) he can and 2.) he's bi-polar so that gives him the "right" to act up - NO way! Our youngest girl just turned 6 in March. She and her brother are both red heads and live up to it! lol
My favorite things to do when I'm not on the phone with doctors, social workers and the school are read a good romance novel, blog and watch old movies - the classics and musicals. I love the color purple BIG time and anything chocolate. I love playing Guitar Hero and Rock Band too. My kids think that's way cool. I love to take pictures and try to take at least one a day on a walk or of my kids, the weather whatever. In the Summer we have beautiful flowers all around and I take lots of pictures of them and the bunny family that lives in our backyard.
The kids are home now and wanting to play some Guitar Hero with Mom so off I go......
|
|
|
| |
|
|
Buggsie's World
