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| rOadtrip |
| 06.19.08 (5:13 pm) [edit] |
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Kayla is still in the hospital. We are asking to take her home on Monday. Dennis is going to make some deliveries for an auctioneer friend of his. He has several clocks that need to be delivered. First stop Maryland then on to North Carolina, South Carolina and 3 stops in Florida and then up to Kentucky.
We've decided to make a vacation out of this. It may be a h-u-g-e mistake but hey I need a break and I think a change of scenery will do us all good. I did make Den promise to do at least one fun thing in each state. He is a work-a-holic! He said fine. I would love to see the Outer Banks.
Today was Keelys' Moving Up Day it was very nice. She's now a 1st grader! Derricks' 7th grade Awards Ceremony is next Wed. a.m. but it looks like we will be out of town by then. The good news is that we do not have to rush we are on our own schedule which is nice.
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| why is life so out of control? |
| 06.06.08 (10:43 am) [edit] |
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I'm wiped out this week! 3 appointments alone at Four Winds with Kaylas' therapist Dr. Joe. Dennis went to every session - too little too late? Probably. Dr. Joe knows us very well he's been Kaylas' therapist a few times and Derricks' too when he was an in-patient at Four Winds.
Hamptonburgh House still wants Kayla even though she's currently in-patient at FourWinds! They said she could be transferred from FW directly to Hamptonburgh upon her discharge. Dennis is not having that.
Look I do NOT want Kayla out of the house it's bad enough that she is in and out of the hospital but what Dennis needs to ask himself is what's best for Kayla? Kayla has been with Waiver services through Parsons (highest level of care/services available without being put in a hospital) for 15 months now. Usually the progam is to stabilize a person so they do not have to go in and out of the hospital. With Kayla she's already over budget as they say and here is a very telling fact of the 15 months in Waiver Kayla has been an in-patient for 150 days at Four Winds in total. So what is that telling you?
Hamptonburgh House is the best place for Kayla once she is stabilized on her meds. Did I sound convinced there myself? I feel like life is spining out of control here more so than usual and it's very overwhelming. Dennis and I need to be UNITED and we are not.
Where will this all go? When will the madness end? What is going to happen before something breaks? I'm worried but I'm praying very hard and trying to keep faith and pray for strenght to get through this.
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| much the same |
| 06.02.08 (9:35 pm) [edit] |
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Derrick got the results of his NYSSMA solo and he scored only 17 out of 28. That's disappointing because he knows his music he just will not practice. He said that he only got 1 scale out of 4 - he totally blanked on the scales he said the judge was so nasty he just wanted to finish and get out. He did very well on the sight reading piece. I can't wait to get the actual judges' score sheet paper the orchestra teacher Miss K gets it and we are given a copy from her. Der said the judge did have some positive points written down - thank God for that.
I am so tired tonight. Derrick has not been sleeping so I hear him moving around and then I can't get to sleep.......
Kayla had a good day, although the nurse told me on the phone today that Kayla was hearing "alot of voices" I said well change her medication! The Clozaril is NOT working and it's been 6 months let's try a different medication. The big news was that Dr. Lore who had been Kays' psychiatrist at Four Winds is gone! Yup no longer works for FWinds! What's with that? The hospital is pretty tip lipped about the situation. Dennis, Derrick and I have a "family meeting" tomorrow at FWinds w/Kayla and Dr. Joe her therapist. I love him he's great and he knows us as a family so well. I'm really very comfortable with him and so is Kayla.
Well I'm hoping that Dr. Joe will also give Derrick a very good looking over to see if he needs a hospital admission right now. I swear if someone does not do something soon for Derrick we are going to be in a hell of a mess!
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| waiting is tough |
| 06.01.08 (9:22 am) [edit] |
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Saturday we did the NYSMMA thing for Derrick and the judge that he had was rough - what a grouch! OMG my son is 13 and a Level 4! Most of the level 4s' are in high shool and have had private lessons their whole lives. Derrick said the judge kept muttering low under his breath but Der was pretty sure that when he asked Der to play the E Major scale? and Der kind of blanked out that as soon as he started to play it the judge said "that was a mess"!
Oh well we can't protect our kids from the world but these judges should give their honest opinions but in a nice way don't you think? Derrick is the kind of kid that pushes himself he has OCD and he is tough enough on himself. He felt horrible all day yesterday not bad just horrible all day and night over this "score" which we did not even get because I could not find his orchestra teacher she was all over the place and the judge was rude and was running over with all his kids by 15 minutes so we will just have to wait until Monday for his score.
I'm going to see Kayla today with Keely. Derrick can't go because it's the annual Strawberry Festival at Mohonasen and the entire music program plays at different times during the day. Derick would have to play when it's time to visit Kayla so my mom will just bring him over and wait until he's done and then maybe get something good to eat - something with strawberries of course! lol
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Buggsie's World
